Resources:
I've listed some resources by topic that have been helpful for us during our allergy journey.
Food Allergy Resources:
- Food Allergy Research & Education (FARE): https://www.foodallergy.org/
- Food Allergy & Anaphylaxis Emergency Care Plan: https://www.foodallergy.org/living-food-allergies/food-allergy-essentials/food-allergy-anaphylaxis-emergency-care-plan
- Kids with food allergies: https://kidswithfoodallergies.org/
- Low histamine diet: https://mastcell360.com/low-histamine-foods-list/
- Fail safe (low food chemicals) diet: https://www.fedup.com.au/factsheets/support-factsheets/how-to-start-failsafe-eating
- Corn allergy information: https://cornallergygirl.com/
- Corn Allergy group: https://www.facebook.com/groups/4871812419
- Coconut Allergy group: https://www.facebook.com/groups/781619538534734
- No latex group: https://www.facebook.com/groups/214602145231232
- Latex Allergy: https://allergyasthmanetwork.org/allergies/latex-allergy/
- Latex Allergy safe sports equipment (**ALWAYS** double-check with manufacturer): https://allergyasthmanetwork.org/wp-content/uploads/2020/05/latex-free-sports-equipment.pdf
- Latex Allergy safe school supplies (**ALWAYS** double-check with manufacturer): https://allergyasthmanetwork.org/wp-content/uploads/2020/05/latex-free-school-products.pdf
- Low Oxalate diet group: https://www.facebook.com/groups/TryingLowOxalates
- Parents of Children with Multiple Food Allergies: https://www.facebook.com/groups/640059806110848
- Functional Medicine providers: https://www.ifm.org/find-a-practitioner/
Breastfeeding elimination diets:
- Dairy free breastfeeding: https://www.facebook.com/groups/dairyfreediet.breastfeeding
- Total Elimination Diet (TED) mamas: https://www.facebook.com/groups/178574749170378
- TED Mamas Group website: https://tedmamas.com/2018/03/19/tedmamas/?
- Low histamine diet: https://mastcell360.com/low-histamine-foods-list/
- Fail safe (low food chemicals) diet: https://www.fedup.com.au/factsheets/support-factsheets/how-to-start-failsafe-eating
- Academy of Breastfeeding Medicine's Allergy Proctocolitis protocol: https://www.bfmed.org/assets/DOCUMENTS/PROTOCOLS/24-allergic-proctocolitis-protocol-english.pdf
Food Protein-Induced Enterocolitis Syndrome (FPIES) Resources :
- FPIES: https://fpies.org/
- What is FPIES: https://www.fpies.org/what-is-fpies/
- FPIES Foundation: https://fpiesfoundation.org/
- FPIES Providers: https://fpiesfoundation.org/find-a-healthcare-provider/
- FPIES Support Group: https://www.facebook.com/groups/231244343581206
Mast Cell Activation Syndrome (MCAS) Resources :
- https://link.springer.com/article/10.1007/s00210-016-1247-1
- Mast cell activation syndrome: https://www.mastattack.org/
- Mast Cell 360: https://mastcell360.com/
- Dr. Theoharides's website: mastcellmaster.com
- Allison Vickery's website: https://www.alisonvickery.com/
- Minis with Masto Group: https://www.facebook.com/groups/166954246801430
- Low histamine diet: https://mastcell360.com/low-histamine-foods-list/
Books:
- Walker, A. Mast Cells United: A Holistic approach to mast cell Activation Syndrome. https://www.amazon.com/Mast-Cells-United-Holistic-Activation/dp/1733711708
- Afrin, L. Never Bet Against Occam: Mast Cell Activation Disease and the Modern Epidemics of Chronic Illness and Medical Complexity. https://a.co/d/7VEHPrJ
MCAS diagnosis criteria published literature:
- Valent, Peter, et al. "Definitions, criteria and global classification of mast cell disorders with special reference to mast cell activation syndromes: a consensus proposal." International archives of allergy and immunology 157.3 (2012): 215-225. https://karger.com/iaa/article/157/3/215/167326/Definitions-Criteria-and-Global-Classification-of
- Valent, Peter, et al. "Definitions, criteria and global classification of mast cell disorders with special reference to mast cell activation syndromes: a consensus proposal." International archives of allergy and immunology 157.3 (2012): 215-225. https://karger.com/iaa/article-pdf/157/3/215/2963637/000328760.pdf
- Gülen, Theo, et al. "Selecting the right criteria and proper classification to diagnose mast cell activation syndromes: a critical review." The Journal of Allergy and Clinical Immunology: In Practice 9.11 (2021): 3918-3928. https://www.sciencedirect.com/science/article/pii/S2213219821006760
Metal Allergy Resources:
- Nickel Metal Allergy: https://dermnetnz.org/topics/nickel-allergy
- Systemic Nickel Allergy Syndrome (SNAS): https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4406458/
- Nickel Food allergy: https://nickelfoodallergy.com/
- Nickel in foods: https://rebelytics.ca/nickelinfoods.html
- Cobalt in foods: https://rebelytics.ca/SNASresources.html
- Low Nickel Diet & Lifestyle [Living & Eating Well with Nickel Allergy]: https://www.facebook.com/groups/188176861531931
- Cobalt Allergy group: https://www.facebook.com/groups/428670667284573